Communication Accessibility for adults with hearing loss during the COVID-19 pandemic
The purpose of this survey is to collect information on the impact the pandemic has had on the daily lives of people who experience hearing loss and deafness.
The rapidly evolving coronavirus (COVID-19) situation has been unsettling, changing daily lives of people around the globe. There is a great deal of uncertainty and we are all relying on news briefs, social media, health videos and information provided electronically to ensure we have received the most current health updates. This information is being updated on an hourly basis and it is important the content reaches all Canadians.
The purpose of this survey is to collect information on the impact the pandemic has had on the daily lives of people who experience hearing loss and deafness. This information will help us better understand how the pandemic has been experienced and also how information about the virus and disease can best be delivered to the public.
This survey is part of a larger Canadian Hard of Hearing Association (CHHA), Wavefront Centre for Communication Accessibility and University of British Columbia partnership project that will help us better understand ways to create accessible content and guidelines for Canadians that require accessible communication. CHHA and Wavefront Centre are working together to ensure the government, broadcasters and others are learning about accessible communication.
If you agree to participate in this study, you will be asked to complete an online survey with questions about your thoughts, feelings and behaviours in response to the COVID-19 outbreak.
Principal Investigator | Dr. Brenda Poon
Senior Research Fellow, Research Division Lead, Wavefront Centre for Communication Accessibility, Assistant Professor, School of Population & Public Health, Faculty of Medicine, The University of British Columbia
Co-Principal Investigator | Dr. Lorienne M. Jenstad
Associate Professor, Faculty of Medicine, School of Audiology & Speech Sciences, The University of British Columbia
The online questionnaire will take about 25 minutes to complete. Each question also includes an embedded link to a video with translation of the question in American Sign Language (ASL). At the end of the questionnaire, you will be asked to provide your email address if you are interested in receiving further information about the Canadian Hard of Hearing Association (CHHA) and the support they offer. You are not required to provide your email address.
This study is being conducted by a research team led by Drs. Brenda Poon and Lorienne Jenstad. If you have any questions or require assistance in completing this survey, please email our project team member Kaitlyn at firstname.lastname@example.org
Risks and Benefits of Participation
There are no known or suspected risks associated with participating in this study. However, by participating, you will help us better understand ways Canadians that require accessible communication can reach up-to-date information about the pandemic.
Your confidentiality will be respected. All the survey data will be kept secure and stored and backed up in Canada. Questionnaire responses will be stored separately from the optional identifying information. All the survey responses you provide will be used solely for research purposes and only members of the research team will have access to the data. Summaries of the survey results may be provided in future presentations, reports, or journal articles. The Principal Investigators may be required by journals to make the study findings and/or de-identified data available at the time of publication.
The personal information that we collect from you if you choose to share it (specifically, your email address) will never be stored with your survey responses or your study data, and will only be shared with Wavefront Centre for Communication Accessibility with your permission. Even with this effort to maintain privacy, however, there is still the potential that you may be at risk for loss of privacy if the de-identified study data were to be made public. You will not be able to withdraw your survey data once submitted.
Your participation in this study is entirely voluntary and you may refuse to participate or withdraw from the study at any time. There will be no penalty if you choose not to participate or if you start to participate and then change your mind. If you decline to participate, there will be no jeopardy to your treatment or standing whatsoever. Clicking the arrow below indicates that you have understood the information regarding participation and agree to participate.
If you have any concerns or complaints about your rights as a research participant and/or your experiences while participating in this study, contact the Research Participant Complaint Line in the UBC Office of Research Ethics at 604-822-8598 or if long distance e-mail RSIL@ors.ubc.ca or call toll free 1-877-822-8598.
UBC Ethics ID Number: H20-03937